BPAN Gene Therapy at CHOP

Fundraiser Profile

Participating in 2025 Million Dollar Bike Ride

Member of Team NBIA Disorders

Supporting BPAN Gene Therapy at Children's Hospital of Philadelphia

Team NBIA Disorders is proud to support Gene Therapy efforts happening at the Children's Hospital of Philadelphia.

Due to generous donations from Maddie B's Army, Isabel's Chance, and Sherri Hansen and Peter Pawlowski, we now have a $50,000 match for BPAN Gene Therapy!

Funds must be raised by June 30th in order to be matched and allocated for Gene Therapy.

Thanks for supporting BPAN research!

Donations 16

Organizations participating in the 2025 Million Dollar Bike Ride will receive the funds raised by their team. Your donation plays a pivotal role, allowing organizations to not only support rare disease research, but make a direct impact on patients and families in their rare disease community. Thank you!

Million Dollar Bike Ride is coordinated by Penn Medicine's Orphan Disease Center. Funds from the 2025 Million Dollar Bike Ride are being distributed to teams through partnership with rare-disease nonprofit, Uplifting Athletes.