Chris Davis

Lymphangioleiomyomatosis (lim-FAN-je-o-LI-o-MI-o-ma-TO-sis) is a rare lung disease that usually strikes women during the prime of their lives. Known as LAM for short, this disease is characterized by an abnormal growth of smooth muscle cells, especially in both lungs, lymphatic system, and kidneys. Unregulated growth of these cells can lead to loss of lung function. My daughter Sarah, now 43, was diagnosed with LAM in the summer of 2018.

The specifics of LAM:

• an ultra-rare, difficult-to-diagnose respiratory disease.

• affects mostly women.

THERE IS NO CURE, and, if there is severe respiratory decline, the only option for survival is double lung transplantation.

A major annual fundraiser for the LAM Foundation is the UPENN Orphan Disease Center Million Dollar Bike Ride (MDBR), which raises research dollars for orphan diseases, where the rarity of the disease means there is a lack of funding for discovering treatments. With the MDBR now in its 13th year, the LAM Foundation has again fielded the “Easy Breathers” Team (beginning with the first MDBR) to raise awareness of and funding for LAM.

My cycling passion steered me into the MDBR to raise funds for LAM research. My first MDBR was in 2020, with Covid forcing the MDBR into a virtual event. Two friends and I rode as a trio, distancing 72 miles along the NH and MA seacoasts. That year, I was tearfully inspired by Sarah’s big heart and grit as she too committed to riding the MDBR on her home exercise bike. She rode her own journey of 72 miles, covering 4-6 miles a session, utilizing portable oxygen to overcome her deficit of only 35 percent lung capacity. Her positive outlook, and as a LAMMIE, reflecting, “72 miles, no problem, I got this, I’m Sarah strong” is why I ride. If she can ride with 35% O2, I must and I will. Let me tell you, the LAMMIES are a tough and resilient group of women.

And in 2023, I became the "on road" Team Co-Captain for the "Easy Breathers" in Philadelphia. Please join the LAM Foundation and Team Easy Breathers by riding, volunteering or supporting the 13th annual MDBR Saturday, June 13 in Philadelphia, PA.

“There are three ways to pedal a bike. With the legs, with the lungs, or with the heart.” Mandible Jones

In 2026, your donation will directly fund LAM disease research. The difference you can make is immeasurable. As always, thank you for your support!