INADcure Foundation

Fundraiser Profile

Participating in 2025 Million Dollar Bike Ride

Member of Team NBIA Disorders

Riding with Purpose — For INAD Gene Therapy (Donations Matched up to $5,000!)

The INADcure Foundation is excited to be riding as part of Team NBIA Disorders in the 2025 Million Dollar Bike Ride! Thanks to a generous matching grant from the NBIA Disorders Association, every donation will be matched up to $5,000 — doubling the impact to help advance our gene therapy program toward a clinical trial.

What is NBIA?

Neurodegeneration with Brain Iron Accumulation (NBIA) is a family of rare, inherited disorders where excess iron in the brain gradually damages the nervous system.

About INAD

Infantile Neuroaxonal Dystrophy (INAD) is one of these disorders. Often likened to pediatric ALS or Parkinson’s, INAD robs children of their motor and cognitive skills, stealing first steps, first words, and, tragically, most lives before age ten.

Why Your Support Matters

There are no FDA-approved treatments to stop or slow INAD’s progression, but there is hope. Scientists are now developing a gene therapy, with promising preclinical results, that aims to replace the faulty gene and halt the disease in its tracks.

How Your Donation Helps

All donations on this page will be matched by the NBIA Disorders Association up to $5,000 and will support our gene therapy initiative for INAD.

Thanks for helping us pedal closer to a cure! 🚴‍♀️ 🧬

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Organizations participating in the 2025 Million Dollar Bike Ride will receive the funds raised by their team. Your donation plays a pivotal role, allowing organizations to not only support rare disease research, but make a direct impact on patients and families in their rare disease community. Thank you!

Million Dollar Bike Ride is coordinated by Penn Medicine's Orphan Disease Center. Funds from the 2025 Million Dollar Bike Ride are being distributed to teams through partnership with rare-disease nonprofit, Uplifting Athletes.