Megan Manotti

Ride. Walk. Rally for Primrose. Join Logan and Team Beyond Primrose at the Million Dollar Bike Ride and help raise awareness, inspire hope, and support the future of Primrose Syndrome research.

In September 2025, after our youngest son, Logan, was diagnosed with Primrose Syndrome, an ultra-rare genetic neurodevelopmental disorder that can cause differences in hearing, muscle tone, learning, vision, and metabolism, with symptoms ranging from mild to more complex and changing over time.

Along with an incredible community of parents, clinicians, and researcher who have refused to accept that there is nothing we can do for our children, we have transformed personal diagnosis into a global mission—raising awareness, strengthening community support, and building the infrastructure needed to move research forward so families everywhere feel seen, supported, and hopeful.

The day includes multiple ride distances, a one-mile walk, rare disease team gathering spaces, food, music, games, and post-event festivities for all ages.

Event Details:

https://www.milliondollarbikeride.org/

Registration Notes

Team Affiliation: When registering, select Beyond Primrose ZBTB20 Foundation as the team you are affiliated with.