$3,700
Raised of $20,000
The UGDH Foundation
Team Profile
Team participating in 2025 Million Dollar Bike Ride
Captained by Alyssa Maule and Rebekah Hall
Our Mission for Rare Disease Research
The Penn Medicine Orphan Disease Center hosts the Million Dollar Bike Ride event to raise money for research in rare diseases. TUF is excited to participate! Please consider donating to our cause and being a part of transformative rare disease research.
The UGDH Foundation began with a handful of parents seeking medical answers for a disorder that eluded diagnosis, defied treatment and severely limited the abilities of their children. We now exist to bring relief to families affected by Jamuar Syndrome (UGDH gene disorder) through scientific collaboration for better treatments and a cure.
In 2025, your donation will directly benefit our organization. Your donation not only helps further rare disease research, but also benefits patients and families in the UGDH community. The difference you can make is immeasurable. Thank you for your support!
Team Members 15
Rebekah Hall
Meg Hall
Alyssa Maule
JoeyLynn Nolan
Rebekah Shullenbarger
Donations 37
Organizations participating in the 2025 Million Dollar Bike Ride will receive the funds raised by their team. Your donation plays a pivotal role, allowing organizations to not only support rare disease research, but make a direct impact on patients and families in their rare disease community. Thank you!
Million Dollar Bike Ride is coordinated by Penn Medicine's Orphan Disease Center. Funds from the 2025 Million Dollar Bike Ride are being distributed to teams through partnership with rare-disease nonprofit, Uplifting Athletes.