$4,311

Raised of $20,000

The UGDH Foundation

Team participating in 2025 Million Dollar Bike Ride

Captained by Alyssa Maule and Rebekah Hall

Our Mission for Rare Disease Research

The Penn Medicine Orphan Disease Center hosts the Million Dollar Bike Ride event to raise money for research in rare diseases. TUF is excited to participate! Please consider donating to our cause and being a part of transformative rare disease research.

The UGDH Foundation began with a handful of parents seeking medical answers for a disorder that eluded diagnosis, defied treatment and severely limited the abilities of their children. We now exist to bring relief to families affected by Jamuar syndrome (UGDH -related disorder) through scientific collaboration for better treatments and a cure.

In 2025, your donation will directly benefit our research fund dedicated to Jamuar syndrome. Your donation not only helps further rare disease research, but also benefits patients and families in the UGDH community. The difference you can make is immeasurable. Thank you for your support!

Team Members 30

Rebekah Hall

3 days ago

Hello, friends! Since you supported this campaign I wanted to share an update. We've now met 20% of our goal to build a research fund! This was only possible through the generous support of folks such as you. Thank you.

We have five weeks left to raise another $16,000. Can you help by spreading the word? If you haven't yet, you could drop an e-mail to friends or family or make a social media post. We're on Facebook and Instagram @ugdhfoundation.

We also have time to work out business sponsorships. So if you know a business that would like to support a good cause, you can put us in touch.

Thanks!

Donations 45

Organizations participating in the 2025 Million Dollar Bike Ride will receive the funds raised by their team. Your donation plays a pivotal role, allowing organizations to not only support rare disease research, but make a direct impact on patients and families in their rare disease community. Thank you!

Million Dollar Bike Ride is coordinated by Penn Medicine's Orphan Disease Center. Funds from the 2025 Million Dollar Bike Ride are being distributed to teams through partnership with rare-disease nonprofit, Uplifting Athletes.