The winner of this item will receive a copy of Extraordinary! A Book For Children with Rare Diseases and a one-of-a-kind Zebra Purse, lined with magnetic closure, handmade by Ugandan textile artist Veronica Namayuba.

Extraordinary! A Book for Children with Rare Diseases allows the winner to understand what author Evren Ayik learned from growing up with a rare disease and how he finds the silver linings throughout life!

A one-of-a-kind purse from Veronica Namayuba allows you to walk away with a beautiful piece of fashion you can wear with anything.