TMS MastCellCon On Tour-Raleigh
Join us in Raleigh, North Carolina on November 13th and 14th to learn about mast cell diseases and to connect with other members of our community.
Program Overview
We are excited to bring a full day's worth of learning and networking to our participants in Raleigh!
We are still working out some of the specifics on the event's agenda but we wanted to give an overview of the program's schedule so that everyone can start thinking about travel arrangements.
As we finalize things with the agenda, we will be updating the information on this page.
Friday, November 13, 2026
Event Check-In will be available from 12:00 PM to 1:45 PM.
2:00 PM Welcome & Opening Plenary Session: Mast Cell Mania: The Trivia Showdown
3:45 PM Break
4:00 PM Learning Session: Disease-Specific Breakouts
5:00 PM Day 1 Adjourns
6:00 PM Dinner Reception Sponsored by Blueprint Medicines, a Sanofi Company
Friday, November 13, 4:00 PM - Breakout Sessions
Your MCAS Roadmap: From Diagnosis to Daily Management
This session will break down the science behind mast cell activation and help patients connect the dots between symptoms, mediators, diagnosis, and treatment options—so they can better understand their condition and participate more confidently in their care.
Speakers: Dr. Frank Lichtenberger
The SM Landscape: Understanding Subtypes, Current Treatments, and New Directions
This session will help patients and families understand the evolving SM landscape—from disease subtypes and current treatment strategies to the research breakthroughs that are bringing new possibilities to the community.
Speakers: Dr. Lindsay Rein
Saturday, November 14, 2026
8:00 AM Breakfast & Optional Support Group Sessions
9:30 AM Plenary Session: Power in Participation: Introducing the Mast Cell Disease Patient Registry
Be among the first to explore the new Mast Cell Disease Patient Registry in this interactive workshop. Learn how the registry works, why patient participation is essential to advancing research and improving care, and how your privacy is protected. Participants will receive step-by-step guidance on enrolling, have the opportunity to ask questions, and leave ready to make a meaningful contribution to the future of mast cell disease research. Speakers: Shonna Snyder, PhD. and Amanda Flontek-Crofoot.
10:45 AM Networking Break
11:00 AM Learning Session: Disease-Specific Breakouts
12:15 PM Community Conversations and Lunch
1:30 PM Learning Session: Closing Plenary: When Chronic Illness Changes Everything: Finding New Ways to Cope
This session will explore the emotional challenges that often accompany chronic illness and provide practical, evidence-based strategies for coping. Participants will learn ways to build resilience, manage stress, communicate their needs, and develop healthy habits that support emotional well-being. Speaker: Dr. Janice Chiappone
2:45 PM Closing Remarks
3:00 PM Event Adjourns
Saturday, November 14th 11:00 AM - Breakout Sessions
When Conditions Overlap: Navigating MCAS, POTS, and EDS
This session will help patients better understand the overlap between MCAS, POTS, and EDS, why these conditions can be challenging to navigate, and how a coordinated approach to care can help patients and providers see the bigger picture.
Speaker: Dr. Anne Maitland
Your SM Matters: Making Sure Every Doctor Understands the Bigger Picture
This session will explore what patients need to communicate to non-SM providers, how to prepare for medical decisions that may affect mast cell activation, and how to advocate for safe, coordinated care across the healthcare system.
Speakers: Dr. Lindsay Rein