Megan Grieves

When I joined the board of the ZC4H2 Research Foundation in 2022, I was driven by a deep passion to support parents like me in advocating for their children with ultra-rare conditions. As a parent, you quickly realize that your child’s voice—and their future—rests in your hands. Without understanding the anecdotal evidence and current research out there, it’s impossible to demand better treatments. That’s why this cause means so much to me.

Since joining the board and achieving nonprofit status in the U.S., we’ve made incredible strides. Together, we’ve funded five research studies that are unraveling the mysteries of ZC4H2 mutations. But there’s still so much more to do. In 2025, your generous donation will fuel another vital research grant, bringing us closer to effective treatments for ZARD (ZC4H2-Associated Rare Disorder). Every dollar you give goes directly to research—100%—and will be matched up to $15,000, doubling your impact.

Your support could change lives in ways we can’t yet measure. Thank you for standing with us on this journey!