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Raised of $250
NBIA Disorders Association
Fundraiser Profile
Participating in 2025 Million Dollar Bike Ride
Team Captain of Team NBIA Disorders
Amber Denton - NBIA Disorders Association
The Penn Medicine Orphan Disease Center hosts the Million Dollar Bike Ride event to raise money for research in rare diseases. Our organization is excited to participate! Please consider donating to our cause and being a part of transformative rare disease research.
In 2025, your donation will go directly to NBIA Disorders Association for research into the NBIA subtype of your choosing. Any family living with NBIA can participate and raise research dollars for your disorder. Your donation helps us to issue research grants to investigators around the world studying NBIA.
We will also be looking for NBIA families to participate in the bike ride in Philadelphia or volunteer to man a rest stop hosted by NBIA Disorders Association.
The difference you can make is immeasurable. Thank you for your support!
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Organizations participating in the 2025 Million Dollar Bike Ride will receive the funds raised by their team. Your donation plays a pivotal role, allowing organizations to not only support rare disease research, but make a direct impact on patients and families in their rare disease community. Thank you!
Million Dollar Bike Ride is coordinated by Penn Medicine's Orphan Disease Center. Funds from the 2025 Million Dollar Bike Ride are being distributed to teams through partnership with rare-disease nonprofit, Uplifting Athletes.