$27,131
Raised of $20,000
Lindsey Noonan
Fundraiser Profile
Participating in 2023 Million Dollar Bike Ride
Member of SETBP1 Strong
Corey's Cruiser's Ride for SETBP1
The Noonan Family is riding for the 3rd year in a row for this amazing event to raise money for SETBP1 research. With your support we are closer than ever to finding meaningful treatments that will enhance the quality of life for our loved ones affected by SETBP1 haploinsufficiency.
In the last year, we successfully opened a multidisciplinary clinic in Denver, CO! This is a designated Center of Excellence that provides children and adults worldwide who have SETBP1-HD or SETBP1-related disorder compassionate, high-quality care with a focus on how these disorders affect the entire family. The clinic brings together doctors and providers from many specialties for comprehensive SETBP1-HD and related disorder care based on the latest research.
100% of your donations will go directly to the SETBP1 Society. Please consider joining us as we fund research to further understand the SETBP1 gene and how if affects our kiddos everyday lives. Corey and all of his SETBP1 buddies thank you!
