$475
Raised of $180,000
Lulu's Crew / STXBP1 Encephalopathy
Team Profile
Team participating in 2026 Million Dollar Bike Ride
Captained by Erin Prosser (Lucy's mom)
Our Mission for Rare Disease Research
The Penn Medicine Orphan Disease Center hosts the Million Dollar Bike Ride event to raise money for research in rare diseases. Our organization is excited to participate! Please consider donating to our cause and being a part of transformative rare disease research.
In 2026, your donation will directly benefit our organization. Your donation not only helps further rare disease research, but also benefits patients and families in our rare disease community. The difference you can make is immeasurable. Thank you for your support!
About the Event
Jun 13, 2026
07:30AM
Team Members 14
Lindsey Davis
Lou Kratz
Jacqueline Steinberg
Dianne LaMastra
Mary Moyer
Donations 5
Organizations participating in the 2026 Million Dollar Bike Ride will receive the funds raised by their team. Your donation plays a pivotal role, allowing organizations to not only support rare disease research, but make a direct impact on patients and families in their rare disease community. Thank you!
Million Dollar Bike Ride is coordinated by Penn Medicine's Orphan Disease Center.