Ride (La)fora Cure

The Penn Medicine Orphan Disease Center hosts the Million Dollar Bike Ride each year to raise money for research in rare diseases, and we're incredibly excited to participate! Please consider donating to our cause (Lafora Disease) and being a part of transformative rare disease research. 

In 2025, your donation will directly benefit Chelsea's Hope Lafora Children's Research Fund. Your donation not only helps further rare disease research, but also directly benefits patients and families in our rare disease community. Lafora Disease is a rare, progressive and terminal form of epilepsy that affects people of all genders and races. This disease starts in otherwise perfectly healthy children and teens, who go on to develop untreatable seizures, early onset dementia, and eventually pass away in their early 20's.

There is currently no treatment, and no cure, but clinical trials are underway to give these families hope. The difference you can make is immeasurable -- your donation will help get more patients access to medicine in a clinical trial at the University of Texas Southwestern Medical Center. Please consider donating so we can defeat Lafora. Thank you for your support!