$6,424
Raised of $10,000
The Jansen de Vries Syndrome Foundation
Team Profile
Team participating in 2026 Million Dollar Bike Ride
Captained by Kara Kilroy
Our Mission for Rare Disease Research into Jansen de Vries Syndrome
The Penn Medicine Orphan Disease Center hosts the Million Dollar Bike Ride event to raise money for research in rare diseases. Our organization is excited to participate! Please consider donating to our cause and being a part of transformative rare disease research.
In 2026, your donation will directly benefit our organization. 100% of the proceeds for this fundraiser go directly to the Jansen de Vries Syndrome Foundation's Fund the Future Campaign and will help our community invest in the important research necessary to advance our understanding and ultimately improve the lives of those living with Jansen de Vries Syndrome. The difference you can make is immeasurable. Thank you for your support!
About the Event
Jun 13, 2026
07:30AM
Team Members 7
Wells Horne
Jackson Kilroy
Kara Kilroy
Miller Horne
Rachel Horne
Donations 114
Organizations participating in the 2026 Million Dollar Bike Ride will receive the funds raised by their team. Your donation plays a pivotal role, allowing organizations to not only support rare disease research, but make a direct impact on patients and families in their rare disease community. Thank you!
Million Dollar Bike Ride is coordinated by Penn Medicine's Orphan Disease Center.