APBD Tour de Friends

APBD Manifests During the Prime of Life and Has No Treatment Options

APBD is an ultra-rare, inherited disorder of metabolism that devastates the nervous system. It gives no indication of its presence in infancy or childhood, but it strikes adults when they're in the prime of life -- as young as 35. Most often, sufferers are told they have MS, ALS, peripheral neuropathy, and other severe neurodegenerative ailments which have similar symptoms. At the current time, there is no treatment or cure.

The APBD Tour de Friends is Raising Funds For More Research

Since we started partnering with UPenn’s Million Dollar Bike Ride program in 2016, our researchers at Columbia University, Duke University Medical Center, UT Southwestern Medical Center, University of Florida, Newcastle University, and Hadassah Medical Organization have collectively received over $700,000 in pilot research grants.

Please Support Our Efforts

Make your gift to advance research here.

The APBD Research Foundation’s Board of Directors will MATCH the first $40,000 raised -- provided your donation is made by May 10th. The dollars we raise will also be MATCHED up to $30,000 by Penn Medicine's Orphan Disease Center (ODC).

Ride with APBD Tour de Friends on June 8th, either as a virtual rider, a cyclist, a roller/walker, or as a volunteer by registering here. We need to have 15 people on the ground in Philadelphia, if you are in the greater Philly area and are interested in participating, email us.

Questions? Please contact team co-captains Anesa at anesa@apbdrf.org or Harriet at harriet@apbdrf.org.

Thank you for joining us – and paving the way for more APBD research!

* Donations made towards this campaign by you and our Board will be split between Penn Medicine’s Orphan Disease Center (ODC) research grants for APBD (80%) and the APBD Research Foundation’s patient advocacy and research programs (20%).