$53,936
Raised of $30,000
TBC1D24 Foundation
Team Profile
Team participating in 2023 Million Dollar Bike Ride
Captained by JoeyLynn Nolan
Help Us Fund Research For TBC1D24 Epilepsy
I am JoeyLynn Nolan, Team Captain, and Joey Nolan's Mom.
This is our TEAM PAGE FOR Tbc1d24 Related Epilepsy.
We are filled with gratitude that our team was accepted for our second year, and can not wait to get out there again with all of the other RARE families who work so hard to change the unacceptable.
The Orphan Disease Center at PENN matches the money that we raise- dollar for dollar up to 30k for a research grant for OUR specific gene!
Last year we raised $103,000.00 for Tbc1d24 !!!!
Let's beat last years Goal !!!
As always, we appreciate your support toward the fight against RARE disease.
JOIN US
We need as many cyclists as we can get!
Please consider donating, or even better - joining our team!
The event is held June 10th in Philadelphia and there are 13 mile, 32 mile, and 74 mile options.
We can leisurely ride together while raising funds in honor of all of our kids affected by Tbc1d24 Disorders... the Angels gone too soon, and the Warriors that still fight every day.
Bike Rentals are Available
No need to stress over a bike, rentals are available. We plan to make this as easy and as fun as possible.
Reach out to me for assistance or questions.
Thank you, and Love to you all.
Team Members 56
diana peluso
Johan Fagerholt
JoeyLynn Nolan
Alyssa Maule
Amy D'Aulerio
Alyssa Maule
2 yr. ago
Riding in honor of Baby Joey 🦘 I love his mama so much and so incredibly grateful she came into my life when she did. 💜