$28,013
Raised of $20,000
The UGDH Foundation
Team Profile
Team participating in 2025 Million Dollar Bike Ride
Captained by Alyssa Maule and Rebekah Hall
Our Mission for Rare Disease Research
The Penn Medicine Orphan Disease Center hosts the Million Dollar Bike Ride event to raise money for research in rare diseases. TUF is excited to participate! Please consider donating to our cause and being a part of transformative rare disease research.
The UGDH Foundation began with a handful of parents seeking medical answers for a disorder that eluded diagnosis, defied treatment and severely limited the abilities of their children. We now exist to bring relief to families affected by Jamuar syndrome (UGDH -related disorder) through scientific collaboration for better treatments and a cure.
In 2025, your donation will directly benefit our research fund dedicated to Jamuar syndrome. Your donation not only helps further rare disease research, but also benefits patients and families in the UGDH community. The difference you can make is immeasurable. Thank you for your support!
Team Members 33
Alyssa Maule
Rebekah Hall
Meg Hall
Amy Sauriol
JoeyLynn Nolan
Rebekah Hall
3 wk. ago
We did it! We biked, walked, hugged, smiled, and cried on Saturday. Thank you thank you thank you for all the support you've shown!
Our goal was to raise $20,000....as of now, we're over $27,000! What?? And the party's not yet over. Donations through the MDBR can still be received until June 27! Every bit will help us get closer to finding better treatments and a cure for Jamuar syndrome.
A special shout-out to Mikey's corner! Mikey's friends and family showed up and donated over $1k in his honor!
And happy birthday, baby Connor.
Rebekah Hall
2 mo. ago
Hello, friends! Since you supported this campaign I wanted to share an update. We've now met 20% of our goal to build a research fund! This was only possible through the generous support of folks such as you. Thank you.
We have five weeks left to raise another $16,000. Can you help by spreading the word? If you haven't yet, you could drop an e-mail to friends or family or make a social media post. We're on Facebook and Instagram @ugdhfoundation.
We also have time to work out business sponsorships. So if you know a business that would like to support a good cause, you can put us in touch.
Thanks!
Donations 124
Organizations participating in the 2025 Million Dollar Bike Ride will receive the funds raised by their team. Your donation plays a pivotal role, allowing organizations to not only support rare disease research, but make a direct impact on patients and families in their rare disease community. Thank you!
Million Dollar Bike Ride is coordinated by Penn Medicine's Orphan Disease Center. Funds from the 2025 Million Dollar Bike Ride are being distributed to teams through partnership with rare-disease nonprofit, Uplifting Athletes.