Raised of $30,000
APBD Tour de Friends
Team participating in 2023 Million Dollar Bike Ride
Captained by Natacha Pires and Harriet Saxe
Will You Join Us to Advance APBD Research?
APBD Manifests During the Prime of Life
APBD is an ultra-rare, inherited disorder of metabolism that devastates the nervous system. It gives no indication of its presence in infancy or childhood, but it strikes adults when they're in the prime of life -- as young as 35. Most often, sufferers are told they have MS, ALS, peripheral neuropathy, and other severe neurodegenerative ailments which have similar symptoms. At the current time, there is no treatment or cure.
The APBD Tour de Friends is Raising Dollars To Bring About a Cure
In 1991, the first major discovery concerning the genetic origin of APBD was made. Through imaginative and determined research, the understanding of the disease has deepened immensely. We're closing in on answers that promise to fulfill everyone's dream for treatment and cure!
Please throw your weight behind the effort.
The dollars we raise through the Million Dollar Bike Ride will be MATCHED by Penn Medicine's Orphan Disease Center (ODC), up to $30,000. And we also have Community Supporters who'll MATCH the ODC match -- provided your donation is made by May 31st. Every dollar you donate can generate $3 in research!
ODC banks all funds on our behalf and administers research grants to top researchers around the world.
This is a powerful opportunity to advance APBD research.
Please be generous with your support.
See our website: www.APBDRF.org for more about APBD diagnosis, research, support for patients, the patient registry, and efforts to spread the word in at-risk communities.
Please be sure to check out more videos and subscribe to our YouTube channel: https://www.youtube.com/APBDRFoundation
Team Members 64
2 wk. ago
Signed up & donated to support research for a cure for APBD, only action and dollars will bring about a cure for this and other rare diseases.
4 wk. ago
Rare diseases are not that rare. We struggle to get appropriate care. There is a big need for research to help medical professionals to better care for those of us with rare diseases.
Anonymous donated $50 to Abigail Arky
In memory of Mark Richman
7 hours ago
Samantha Prusin donated $50 to Adam Knoll
1 day ago
Marc and Emily Lurie donated $500 to Harriet Saxe
Courage comes in many forms. Watching my sister and brother-in-law (Harriet and Chuck Saxe) deal with APBD for over a decade and depend on each other for courage has shown me what love and hope mean. Supporting the Million Dollar Bike Ride is the least we can do lift some of the burden. We send our love and support to all. Emily and Marc Lurie
1 day ago
David Nuddle donated $25 to David Nuddle
2 days ago
Steven Krieg donated $50 to Steven Krieg
3 days ago