Raised of $30,000

APBD Tour de Friends

Team participating in 2023 Million Dollar Bike Ride

Captained by Natacha Pires and Harriet Saxe

Will You Join Us to Advance APBD Research?

APBD Manifests During the Prime of Life

APBD is an ultra-rare, inherited disorder of metabolism that devastates the nervous system. It gives no indication of its presence in infancy or childhood, but it strikes adults when they're in the prime of life -- as young as 35. Most often, sufferers are told they have MS, ALS, peripheral neuropathy, and other severe neurodegenerative ailments which have similar symptoms. At the current time, there is no treatment or cure.

The APBD Tour de Friends is Raising Dollars To Bring About a Cure

In 1991, the first major discovery concerning the genetic origin of APBD was made. Through imaginative and determined research, the understanding of the disease has deepened immensely. We're closing in on answers that promise to fulfill everyone's dream for treatment and cure!

Please throw your weight behind the effort.

The dollars we raise through the Million Dollar Bike Ride will be MATCHED by Penn Medicine's Orphan Disease Center (ODC), up to $30,000. And we also have Community Supporters who'll MATCH the ODC match -- provided your donation is made by May 31st. Every dollar you donate can generate $3 in research!

ODC banks all funds on our behalf and administers research grants to top researchers around the world.

This is a powerful opportunity to advance APBD research.

Please be generous with your support.

See our website: www.APBDRF.org for more about APBD diagnosis, research, support for patients, the patient registry, and efforts to spread the word in at-risk communities.

Please be sure to check out more videos and subscribe to our YouTube channel: https://www.youtube.com/APBDRFoundation

Team Members 66

Signed up & donated to support research for a cure for APBD, only action and dollars will bring about a cure for this and other rare diseases.

Rare diseases are not that rare. We struggle to get appropriate care. There is a big need for research to help medical professionals to better care for those of us with rare diseases.

Contributions 234