$560
Raised of $1,000
Ken Barnum
Fundraiser Profile
Participating in 2025 Million Dollar Bike Ride
Member of Lulu's Crew / STXBP1 Encephalopathy
My Mission for Rare Disease Research
The Penn Medicine Orphan Disease Center hosts this event to raise money for research in rare diseases and I'm excited to participate. Please consider donating to our cause and being a part of transformative rare disease research.
In 2025, your donation will directly benefit my team, Lulu's Crew in their attempt to raise money for STXBP1 Encephalopathy research. Your donation not only helps further rare disease research, but also benefits patients and families in our rare disease community.
This is not only a very amazing cause but it's also an issue close to my heart, as my niece Georgia has STXBP1 and she is amazing and worth your financial consideration!
The difference you can make is immeasurable. Thank you for your support!
Donations 6
Organizations participating in the 2025 Million Dollar Bike Ride will receive the funds raised by their team. Your donation plays a pivotal role, allowing organizations to not only support rare disease research, but make a direct impact on patients and families in their rare disease community. Thank you!
Million Dollar Bike Ride is coordinated by Penn Medicine's Orphan Disease Center. Funds from the 2025 Million Dollar Bike Ride are being distributed to teams through partnership with rare-disease nonprofit, Uplifting Athletes.