$11,881
Raised of $50,000
SETBP1 Strong
Team Profile
Team participating in 2026 Million Dollar Bike Ride
Captained by Haley Oyler
Our Mission for Rare Disease Research
The Penn Medicine Orphan Disease Center hosts the Million Dollar Bike Ride event to raise money for research in rare diseases. Our organization is excited to participate! Please consider donating to our cause and being a part of transformative rare disease research.
In 2026, your donation will directly benefit our organization. Your donation not only helps further rare disease research, but also benefits patients and families in our rare disease community. The difference you can make is immeasurable. Thank you for your support!
About the Event
Jun 13, 2026
07:30AM
Team Members 28
Alan Rosemberg
Timothy Dunne
Alan Ratliff
Haley Oyler
Geena Myett
Elisabeth Fiquet
6 days ago
Pour Antoine, on va encore cette année participer à la collecte de dons pour favoriser la recherche sur le gène SETBP1.
On s'entraine depuis quelques semaines déjà pur être au ''TOP'' le 13 juin!
Vous venez nous rejoindre à Dorval?
Timothy Dunne
1 wk. ago
Welcome to Our SETBP1 Team Fundraising Community!
I am so grateful you’re here.
This effort is about coming together as a group of families, friends, and supporters—as well as it is an opportunity for fundraising. Our communities, strengthened immeasurably by our collective gathering around scientific research, not only seek the much needed seed money for research, but come together to emotionally support and inspire each other for the year ahead and to build resilience and relationships on what can feel like a lonely road at times.
Every dollar raised moves us forward. It fuels critical research, deepens our understanding of Aoife’s rare disease (SETBP1 haplo-insufficiency), and helps accelerate the path toward meaningful therapies in the future for this rare disease.
Whether you’re fundraising, donating, or simply showing up—you are making a difference.
Let’s do this together. 💙
-Tim
Donations 110
Organizations participating in the 2026 Million Dollar Bike Ride will receive the funds raised by their team. Your donation plays a pivotal role, allowing organizations to not only support rare disease research, but make a direct impact on patients and families in their rare disease community. Thank you!
Million Dollar Bike Ride is coordinated by Penn Medicine's Orphan Disease Center.