2024 Giving Campaign
Your year-end gift can help us build on our successes and tackle the challenges that lie ahead. Any amount you intend to give will directly support our efforts to provide education, advocacy, and research for CAH.
$10,875 raised
In 2024, CARES Foundation had achieved multiple milestones that would not have been possible without your support. Our advocacy efforts have increased awareness, ensuring that the voices of patients and families are heard.
We launched our podcast, CAH Pulse, which highlights the experiences of patients, family members, medical professionals, researchers and caregivers in this incredible community. The podcast has reached thousands of patients and families, as well as professionals working to develop new treatments.
We provided numerous scholarships for families to attend our annual patient education conference, providing them with vital information and resources to help navigate the complexities of CAH.
We also translated the PACE app (Preventing Adrenal Crisis Events) into Spanish to better serve our community.
The most significant milestone for CARES this year was the Externally Led Patient-Focused Drug Development (EL-PFDD) meeting. This was a unique opportunity for the CAH community to share what daily living with CAH looks like, and the impact it can have, with those members of the FDA who are responsible for approving clinical trials, new medications and medical devices. Patient voices were loud and clear during this meeting; participants were not shy about sharing what daily living with CAH is like, and the need for better treatment options.
Thank you for your continued support and belief in our mission. Wishing you a happy and healthy new year!
CARES Foundation Endowment Fund
CARES Foundation's Podcast
CAH Pulse takes us on a journey to educate & bring attention to the challenges and triumphs of individuals living with Congenital Adrenal Hyperplasia (CAH).
Each episode patients, family members, medical professionals, researchers and caregivers share their stories, experiences and advice about living with this challenging condition. Our hope is to further connect and champion this incredible community.
Catch up on our recent episodes here: https://cahpulse.podbean.com/
CARES 25th Anniversary Gala
We encourage you to SAVE THE DATE for our upcoming 25th Anniversary Gala, taking place on Friday, April 25, 2025 at Current, on Chelsea Piers in New York, NY!
If you would like to donate any items to our silent auction, we encourage you to please reach out to odaly@caresfoundation.org or call (866) 227-3737, toll-free.
Externally Led Patient-Focused Drug Development (EL-PFDD)
We are incredibly grateful to all who participated in the Externally Led Patient-Focused Drug Development meeting on classic congenital adrenal hyperplasia (CAH) with the FDA. Patient-Focused Drug Development (PFDD) is a systematic approach to help ensure that patients’ experiences, perspectives, needs, and priorities are captured and meaningfully incorporated into drug development and evaluation.
This small, but powerful community made sure that the voices of the patients and caregivers were heard loud and clear.
If you had missed an opportunity to watch this meeting, it is available for viewing at https://caresfoundation.org/externally-led-patient-focused-drug-development-el-pfdd/.
2024 Annual CAH Education Conference
CARES Foundation would like to extend our heartfelt gratitude for the overwhelming support received from our community & industry/medical professionals that attended this event both in-person & virtually. Thank you to our incredible speakers and guests who helped make this year’s event possible!
CARES Fall Newsletter - Vol. 27
We encourage you to visit the link here to view the most recent installment of our CARES Foundation Bi-Annual Newsletter! In this edition, you will find important research updates, new dates to save for next year’s events, as well as a variety of support tools that you can take advantage of. Thank you for your support!
CAH Awareness Walks & Family Fundraisers
We truly appreciate all of the hard work & effort put in by our wonderful event hosts & volunteers that helped make this year successful!
It has been amazing to see our community come together to raise awareness & advocate on behalf of CARES and our mission to help improve the lives of those with congenital adrenal hyperplasia (CAH), and we look forward to seeing you again in 2025!
If you are interested in hosting a CAH awareness walk or family fundraiser in 2025, please reach out to dina@caresfoundation.org.
1st Annual Iowa CAH Awareness Walk/5k
We would like to thank Sarah and Derek for making the 1st Annual Iowa CAH Awareness 5K an incredible success! We appreciate all who came out to support our community, and helped us to be #ViviStrong!
Rare Disease Day 2024
On February 29, as a part of Rare Disease Day in 2024, some of the members of our community shared their stories with CARES across our social media & website. We want to encourage you to go back and read some of the inspirational stories that were shared about living and managing life with CAH by visiting here.
Thank you so much to those who had shared their journeys with us. We truly appreciate your contributions to our community! If you are interested in sharing your CAH journey with CARES as part of Rare Disease Day 2025, contact john@caresfoundation.org.
Thank you to the Morris Family!
We want to extend our gratitude to the Morris family, who celebrated Lily's Bat Mitzvah this past April! Wishing you all the best as you celebrate this important milestone!
If you are interested in raising money for CARES in conjunction with a special event, please reach out to contact@caresfoundation.org. Milestones like these are a great opportunity to make a difference in the lives of your loved ones.
Silas Wood Schools - CAH Awareness Family Fundraiser
This past Spring, students at the Silas Wood Sixth Grade Center in South Huntington School walked to raise awareness for CAH! Please take a moment to read more about the impact they had by viewing the article by the Huntington Patch. A huge thank you to all who participated!
2nd Annual Washington CAH Awareness Walk
Thank you to all of those who participated in our 2nd Annual Washington CAH Awareness Walk, and of course a huge thank you to all of our volunteers, and those at Seattle Children's who helped to make this event possible! We are looking forward to returning to Washington again soon!
Union Chi Psi's Hot Ones Challenge for CARES
This past Spring, Union College's Chi Psi Fraternity hosted their first ever, “The Hot Ones” challenge in an effort to help raise money for CARES Foundation.
We are happy to announce that through this incredibly creative and engaging event, the brothers at Union Chi Psi had raised over 120% of their original goal. Because of this, members of the fraternity had to honor their word, and eat the worlds hottest hot sauce!
We would also like to extend a thank you to all of those who participated, donated, and got involved. Thank you again to the brothers of Union Chi Psi!
4th Annual Ohio CAH Awareness Walk
Participants took advantage of the opportunity to meet and connect with families & enjoy a wide array of activities on this beautiful day for the 4th Annual Ohio CAH Awareness Walk! We want to thank Lesley, as well as the numerous amazing volunteers that made this year's event a tremendous success!
9th Annual Clay Shoot for CARES
It was incredible to see our community come together to raise awareness & advocate on behalf of CARES and our mission to help improve the lives of those with congenital adrenal hyperplasia (CAH).
