Bianca Berarducci

My name is Andrea Miller, and I am riding in honor of my daughter, Bianca Berarducci, who is now 16 years old and lives with PMM2-CDG, a rare and complex genetic disorder.

Bianca is nonverbal and has significant medical and developmental challenges, but she is full of joy, personality, and light. Like so many families in the CDG community, we live each day balancing love, resilience, and the unknown — while holding onto hope for what research can bring.

I’m proud to organize Team CDG in the Penn Medicine Million Dollar Bike Ride, an incredible event that raises critical funding for rare disease research.

Through my work with CDG CARE, a global nonprofit dedicated to advancing research, care, and support for individuals living with Congenital Disorders of Glycosylation (CDG) — a group of more than 190 rare genetic diseases — I see firsthand how urgently our community needs progress.

For families like ours, research is more than science — it is hope.
Hope for better diagnostics, meaningful treatments, and a future where children like Bianca have more possibilities.

In 2026, donations to Team CDG will directly support CDG CARE’s research efforts, helping to accelerate discoveries and therapeutic development aligned with the mission of the Orphan Disease Center.

Your support helps move this work forward and strengthens a global community committed to changing the future for individuals living with CDG.

Thank you for being part of this journey — and for supporting Bianca and families like ours. 💚