$75
Raised of $250
Jennifer Clatterbuck
Fundraiser Profile
Participating in 2023 Million Dollar Bike Ride
Member of Lulu's Crew / STXBP1 Encephalopathy
Our Mission
Emma Rose has an STXBP1 disorder. We join Lulu's crew in fundraising to help fund finding a cure for Emma, Lulu, and others like them!
The Penn Medicine Orphan Disease Center hosts this event to raise money for research in rare diseases. Please consider donating to our cause and being a part of transformative research. 100% of your donation will go towards rare disease research.
Jennifer Clatterbuck
2 yr. ago
Emma Rose has an STXBP1 disorder. We join Lulu's crew in fundraising to help fund finding a cure for Emma, Lulu, and others like them!
