$205
Raised of $300
Nancy Lowman
Fundraiser Profile
Participating in 2024 Million Dollar Bike Ride
Member of Team CSNK2A1
My Mission
Hello and thank you for considering to donate to my charity. My name is Brady and I am 20 years old. For the first 14 years of my life, I lived with an unknown syndrome. Myself and family did not know why I was the way I was, but that did not stop my mom from traveling every road, hitting many roadblocks, and leaving no stone unturned. That all changed in April 2017 when I was finally diagnosed with a rare genetic syndrome, Okur-Chung Neurodevelopmental Syndrome (OCNDS).
Since then, I have been able to meet others that have this same rare syndrome who are searching for more answers and even hoping that a cure is found. We all have varying degrees of symptoms, and no two of us are alike. I have also been fortunate enough to have met the two geneticists who discovered this syndrome, Dr. Wendy Chung and Dr. Volkan Okur. I honestly believe we have the two best scientists/geneticists behind us.
Please consider a donation to our CSNK2A1 fundraiser. I will be walking with my mom and aunt Traci in Philadelphia, PA on June 8th 2024. No donation is too small.
Thank you!
Love,
Brady
Nancy Lowman
1 yr. ago
My first time joining! Looking forward to joining our group, CSNK2A1, and meeting others!