$205

Raised of $300

Nancy Lowman

My Mission

Hello and thank you for considering to donate to my charity. My name is Brady and I am 20 years old. For the first 14 years of my life, I lived with an unknown syndrome. Myself and family did not know why I was the way I was, but that did not stop my mom from traveling every road, hitting many roadblocks, and leaving no stone unturned. That all changed in April 2017 when I was finally diagnosed with a rare genetic syndrome, Okur-Chung Neurodevelopmental Syndrome (OCNDS).

Since then, I have been able to meet others that have this same rare syndrome who are searching for more answers and even hoping that a cure is found. We all have varying degrees of symptoms, and no two of us are alike. I have also been fortunate enough to have met the two geneticists who discovered this syndrome, Dr. Wendy Chung and Dr. Volkan Okur. I honestly believe we have the two best scientists/geneticists behind us.

Please consider a donation to our CSNK2A1 fundraiser. I will be walking with my mom and aunt Traci in Philadelphia, PA on June 8th 2024. No donation is too small.

Thank you!

Love,

Brady

Nancy Lowman

1 yr. ago

My first time joining! Looking forward to joining our group, CSNK2A1, and meeting others!

Donations 8