Vanessa Dias

Fundraiser Profile

Participating in 2026 Million Dollar Bike Ride

Member of The MED13L Foundation

Make An Impact For MED13L

The Penn Medicine Orphan Disease Center hosts this event to advance critical research in rare diseases, and I’m proud to be participating in support of The MED13L Foundation.

This year, your donation will directly fuel efforts to better understand MED13L syndrome and accelerate the development of meaningful therapeutics. Every contribution helps move research forward, bringing us closer to real treatment pathways and, ultimately, to hope for individuals and families living with this condition.

Your support is more than a donation, it is an investment in progress, possibility, and a future where answers exist. Thank you for being part of this journey.

About the Event

Jun 13, 2026

07:30AM

Vanessa Dias

1 mo. ago

Welcome to Our MED13L Fundraising Community!

We are so grateful you’re here.

This effort is about so much more than fundraising—it’s about coming together as a community of families, friends, and supporters who believe in a better future for individuals living with MED13L syndrome.

As we kick this off, we encourage you to make this a family experience. Invite your loved ones to join your team, share your story, and connect with other families who truly understand the journey. There is something incredibly powerful about coming together—not just to raise funds, but to build relationships, share experiences, and support one another.

Every dollar raised moves us forward. It fuels critical research, deepens our understanding of MED13L, and helps accelerate the path toward meaningful therapies. But just as important, every conversation you start and every person you bring in expands our community and strengthens our collective voice.

Whether you’re fundraising, donating, or simply showing up—you are making a difference.

Let’s do this together. 💙

Donations 1

Organizations participating in the 2026 Million Dollar Bike Ride will receive the funds raised by their team. Your donation plays a pivotal role, allowing organizations to not only support rare disease research, but make a direct impact on patients and families in their rare disease community. Thank you!

Million Dollar Bike Ride is coordinated by Penn Medicine's Orphan Disease Center.