$50
Raised of $250
Daniele Greiner
Fundraiser Profile
Participating in 2024 Million Dollar Bike Ride
Member of Lulu's Crew / STXBP1 Encephalopathy
My Mission
Roll with us! We're pushing the pedal toward a cure for STXBP1 research with Lulu's Crew on June 8! I am riding virtually in honor of my 9-year-old daughter Cece, who was diagnosed with an STXBP1 mutation when she was 3.
C'mon, let's ride bikes!
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The Penn Medicine Orphan Disease Center hosts this event to raise money for research in rare diseases. Please consider donating to our cause and being a part of transformative research. 100% of your donation, less platform fees, will go towards rare disease research.
Daniele Greiner
7 mo. ago
Excited to ride virtually with Lulu's Crew - Team STXBP1 in honor of our sweet Cece, and to volunCHEER at this year's event! I think I need to sneak into someone's house to borrow a peloton! :)
