$7,880
Raised of $30,000
Team Telomere
Team Profile
Team participating in 2023 Million Dollar Bike Ride
Captained by Bruce Friedman
Team Telomere
Team Telomere’s MDBR Team started as Team Josh’s DCO Riders 2015, in honor of Joshua Friedman. Josh passed away in 2011 from Dyskeratosis Congenita (DC), a telomere biology disorder. Josh lived a full and beautiful life and touched many people throughout. Josh’s lasting legacy is a gift to our community as his story has helped raise over $350,000 in research.
We partnered with Penn’s Orphan Disease Center in 2014, to excel our ability to fund quality science for Telomere Biology Disorders. To date we have raised over $400,000. Our Team Captain is Heather Kagel who is available to answer any questions you may have. Our goal this year is to raise $30k that will be matched dollar for dollar by the Orphan Disease Center.
Team Members 16
Kim Yaden
Bruce Friedman
mayra Garcia
Sarah and Haley Neuenfeldt
Kim Cohee
mayra Garcia
2 yr. ago
Signed up to help raise awareness and funds to one day find a cure for Dyskeratosis Congenita. Our son fought long and hard with the brightest smile. When Julian entered any place he would light up the entire room with his smile, silliness, and pure happiness. You would never think he was suffering with the way he carried it all. Julian was the best thing that ever happened to us and I reminded him every day. My baby had 4 BMT back to back in a short period. Although, he was exhausted his smile never faded. He tried very hard to stay here with us.
In memory of our amazing son, we’re hoping to meet our goal and hopefully exceed it.
