$1,240
Raised of $1,000
mayra Garcia
Fundraiser Profile
Participating in 2023 Million Dollar Bike Ride
Member of Team Telomere
My Mission
The Penn Medicine Orphan Disease Center hosts this event to raise money for research in rare diseases. Please consider donating to our cause and being a part of transformative research. 100% of your donation will go towards rare disease research.
mayra Garcia
2 yr. ago
Signed up to help raise awareness and funds to one day find a cure for Dyskeratosis Congenita. Our son fought long and hard with the brightest smile. When Julian entered any place he would light up the entire room with his smile, silliness, and pure happiness. You would never think he was suffering with the way he carried it all. Julian was the best thing that ever happened to us and I reminded him every day. My baby had 4 BMT back to back in a short period. Although, he was exhausted his smile never faded. He tried very hard to stay here with us.
In memory of our amazing son, we’re hoping to meet our goal and hopefully exceed it.
