Team KCNT1

The KCNT1 Epilepsy Foundation and the University of Pennsylvania Orphan Disease Center (ODC) invite you to participate in the Million Dollar Bike Ride (MDBR).

This annual festival brings together families, friends and supporters representing 30 rare disease organizations to raise funds for rare disease research and spread awareness of rare diseases.

Team KCNT1 will ride to raise funds to further research on KCNT1-related disorders in our quest for a cure! We hope you will join us or donate to the cause.

Our goal is to raise $20,000 for KCNT1-related research. We need to raise a minimum of $20,000 for a research grant. All funds raised between $20,000 and $30,000 will receive a dollar-to-dollar match by the Orphan Disease Center to be used for a 1-year pilot grant.

Team KCNT1 will need in-person riders and volunteers! You must be 16 years or older to participate as a cyclist and 18+ to volunteer. (Children can join you on your bike or ride their bikes but at their own risk.) There will be fun activities and food for the whole family all day long! We hope you will join us!

We LOVE our virtual cyclists! Be sure to visit their pages and support them!

Any questions? Please reach out to Sarah at sarah@kcnt1epilepsy.org We thank you for your ongoing support!